swissy_fit Posted February 18, 2014 Share Posted February 18, 2014 Quit the job years ago - ten years early, to do one of the things on the bucket list Maybe the diagnosis hasn't sunk in yet, but I don't feel despondent or depressed about it, and I've done pretty much all the things I ever wanted to do. We all have to go sometime....just make sure you've emptied your bucket before you're called. I can't max out my credit, I have family. I'm not leaving them any mess to clear up after me. As John Lennon said "Life is what happens, whilst you're making other plans". Oh man. Well done on the highlighted bit, I hope I can say that when the time comes, at the moment it seems doubtful. Everyone will have their opinion how to react, including close family, you must follow your own. Good luck. Link to comment Share on other sites More sharing options...
shindigger Posted February 18, 2014 Share Posted February 18, 2014 Sorry to hear this. All the very best. Link to comment Share on other sites More sharing options...
StainlessSteelCat Posted February 18, 2014 Share Posted February 18, 2014 Quit the job years ago - ten years early, to do one of the things on the bucket list Maybe the diagnosis hasn't sunk in yet, but I don't feel despondent or depressed about it, and I've done pretty much all the things I ever wanted to do. We all have to go sometime....just make sure you've emptied your bucket before you're called. I can't max out my credit, I have family. I'm not leaving them any mess to clear up after me. As John Lennon said "Life is what happens, whilst you're making other plans". Sorry about your news, mate. That sucks mightily. I'm very glad you've done everything you wanted to though (and quit work early to do it). Do go with what's right for you and those dearest to you - and ignore the rest of the b****x. Link to comment Share on other sites More sharing options...
dances with sheeple Posted February 18, 2014 Share Posted February 18, 2014 Not good news -but positive thinking is believed to be very important. Saw an interesting programme last night about the placebo effect. Appears even the most ardent 'i need logical evidence' scientist are starting to accept there are things we simply don't understand. The body seems to have an inbuilt healing ability. How you exactly manage to harness that is another thing all together. On a similar note i just watched the mens snowboard cross final. The bloke that won it tore his ACL in December. As they were saying - he shouldn't even be able to walk right now. His recovery and win is literally being described as a 'miracle'. There is no logical way in which this should even be possible. Anyway - just saying - these things do happen. Good luck. I believe regular meditation can help tap this ability. Link to comment Share on other sites More sharing options...
Gigantic Purple Slug Posted February 18, 2014 Share Posted February 18, 2014 Just had a very bad diagnosis, so this question faces me right now.....at present, I am leaning towards Wilko's views. Make the best of it while you can. Sorry to hear about that Corevalue. I hope whatever path you choose it works out best for you. Link to comment Share on other sites More sharing options...
Oliver Sutton Posted February 21, 2014 Share Posted February 21, 2014 He's got an album out with Roger Daltrey soon. Excellent stuff. Link to comment Share on other sites More sharing options...
corevalue Posted February 21, 2014 Share Posted February 21, 2014 This is why you have to have fully double-blind randomized trials. You can't let the patients know if they are getting the real treatment, because of placebo effects. You can't let the doctors know if they are prescribing the real treatment, because they will bias their selections, thus invalidating the trial. You can't let the researchers know (before the results are tabulated) who it getting what, because they can bias who they select for 'real' and 'fake' treatment., And even then you have to make sure that every trial has results published, not just the ones that worked.. Basically, you have to design trials to eliminate all human bias. You'll still get improvements in the untreated control group, you want to see if the treatment works better. I just got invited onto a trial. Hardly a double-blinded random one. They were suggesting surgery after a course of chemo. Previously they had done the surgery before the chemo, with no noticeable improvement in outcome. I had to push to get the right answers. In the end, the surgeon admitted that he didn't think it was a surgical disease, and that he couldn't promise any improvement in either longevity, or quality of life....he was a little disappointed that I wasn't keen to join his trial as most patients are in worse condition, the implication being that they were struggling to get a balanced set of patients enrolled. Double-blind trials can only be performed with pharmaceuticals vs. placebo's, although often they use new drug vs old drug, so that no patient is completely disadvantaged. On speaking to someone outside the specialist team (my GP), he has suggested starting the chemo, and if it's too taxing - give it up. Link to comment Share on other sites More sharing options...
Turned Out Nice Again Posted February 21, 2014 Author Share Posted February 21, 2014 I just got invited onto a trial. Hardly a double-blinded random one. They were suggesting surgery after a course of chemo. Previously they had done the surgery before the chemo, with no noticeable improvement in outcome. I had to push to get the right answers. In the end, the surgeon admitted that he didn't think it was a surgical disease, and that he couldn't promise any improvement in either longevity, or quality of life....he was a little disappointed that I wasn't keen to join his trial as most patients are in worse condition, the implication being that they were struggling to get a balanced set of patients enrolled. Double-blind trials can only be performed with pharmaceuticals vs. placebo's, although often they use new drug vs old drug, so that no patient is completely disadvantaged. On speaking to someone outside the specialist team (my GP), he has suggested starting the chemo, and if it's too taxing - give it up. Might I request that you keep the thread updated as to what you are trying? I'd be interested anyway. Link to comment Share on other sites More sharing options...
SHERWICK Posted February 21, 2014 Share Posted February 21, 2014 I just got invited onto a trial. Hardly a double-blinded random one. They were suggesting surgery after a course of chemo. Previously they had done the surgery before the chemo, with no noticeable improvement in outcome. I had to push to get the right answers. In the end, the surgeon admitted that he didn't think it was a surgical disease, and that he couldn't promise any improvement in either longevity, or quality of life....he was a little disappointed that I wasn't keen to join his trial as most patients are in worse condition, the implication being that they were struggling to get a balanced set of patients enrolled. Double-blind trials can only be performed with pharmaceuticals vs. placebo's, although often they use new drug vs old drug, so that no patient is completely disadvantaged. On speaking to someone outside the specialist team (my GP), he has suggested starting the chemo, and if it's too taxing - give it up. All the best corevalue! Link to comment Share on other sites More sharing options...
corevalue Posted February 21, 2014 Share Posted February 21, 2014 Might I request that you keep the thread updated as to what you are trying? I'd be interested anyway. I have mesothelioma. Time to failure, about 8-12 months, few make it past 12 months. Taking an 18 week course of chemo, which lowers your immune system, so you can't socialise without grave risk, I've seen papers which quote a 2.8 month extended survival time. There don't seem to be any studies of survival time of palliative care vs chemo/surgery. It doesn't look like much, if any. Not sure I want 4 months of being sick to have 3 months of life extension. Because this all works on skewed (non-Gaussian) distributions, I'll have out with the oncologist what the benefit of chemo TO ME might be. I found it peculiarly hard to get that info from the surgical people, but they finally conceded none at all. I sometime think that the Doctors feel that they should be doing something, not matter how useless. Sort of placebo by medecine? Link to comment Share on other sites More sharing options...
Turned Out Nice Again Posted February 22, 2014 Author Share Posted February 22, 2014 I have mesothelioma. Time to failure, about 8-12 months, few make it past 12 months. Taking an 18 week course of chemo, which lowers your immune system, so you can't socialise without grave risk, I've seen papers which quote a 2.8 month extended survival time. There don't seem to be any studies of survival time of palliative care vs chemo/surgery. It doesn't look like much, if any. Not sure I want 4 months of being sick to have 3 months of life extension. Because this all works on skewed (non-Gaussian) distributions, I'll have out with the oncologist what the benefit of chemo TO ME might be. I found it peculiarly hard to get that info from the surgical people, but they finally conceded none at all. I sometime think that the Doctors feel that they should be doing something, not matter how useless. Sort of placebo by medecine? have you heard about tetrathionmolybdate? http://www.thedcasite.com/Alternate_therapies/tetrathionmolybdate_treatment.html might be worth running it past your oncologist. Link to comment Share on other sites More sharing options...
SHERWICK Posted February 22, 2014 Share Posted February 22, 2014 I have mesothelioma. Time to failure, about 8-12 months, few make it past 12 months. Taking an 18 week course of chemo, which lowers your immune system, so you can't socialise without grave risk, I've seen papers which quote a 2.8 month extended survival time. There don't seem to be any studies of survival time of palliative care vs chemo/surgery. It doesn't look like much, if any. Not sure I want 4 months of being sick to have 3 months of life extension. Because this all works on skewed (non-Gaussian) distributions, I'll have out with the oncologist what the benefit of chemo TO ME might be. I found it peculiarly hard to get that info from the surgical people, but they finally conceded none at all. I sometime think that the Doctors feel that they should be doing something, not matter how useless. Sort of placebo by medecine? It sounds ridiculous to me corevalue. I just don't get these sorts of people at all and they appear in all walks of life! "I suggest that you do this." "Why??" "Er, well, because I suggested it if course!" Anyway, make it a great spring and summer! Link to comment Share on other sites More sharing options...
SHERWICK Posted February 22, 2014 Share Posted February 22, 2014 have you heard about tetrathionmolybdate? http://www.thedcasite.com/Alternate_therapies/tetrathionmolybdate_treatment.html might be worth running it past your oncologist. Interesting link TONA thanks. I notice that there was a follow on link to the importance if Magnesium. This is VERY interesting to me because only this week I began taking a Magnesium suppliment and after only 2 days I noticed a hugely positive effect on my health and body. Lower stress and calmer etc. It's like a bloody miracle! Link to comment Share on other sites More sharing options...
corevalue Posted February 22, 2014 Share Posted February 22, 2014 have you heard about tetrathionmolybdate? http://www.thedcasit..._treatment.html might be worth running it past your oncologist. Very interesting. A poor serum copper:zinc ratio encourages the tumours to form new blood vessels. Lowering the copper serum level stops the tumour growing - doesn't kill it, but stops it. I have reason to believe that I have always been low in zinc.... I'll definitely ask for my serum levels to be checked. For now, liver and shellfish are out! Link to comment Share on other sites More sharing options...
ccc Posted February 22, 2014 Share Posted February 22, 2014 Interesting link TONA thanks. I notice that there was a follow on link to the importance if Magnesium. This is VERY interesting to me because only this week I began taking a Magnesium suppliment and after only 2 days I noticed a hugely positive effect on my health and body. Lower stress and calmer etc. It's like a bloody miracle! Upping your daily dose of Skag would have similar effects. Just saying. Corevalue - best of luck. Link to comment Share on other sites More sharing options...
swissy_fit Posted February 22, 2014 Share Posted February 22, 2014 Upping your daily dose of Skag would have similar effects. Just saying. Corevalue - best of luck. If nothing works, then nearer the end skag would be a good idea IMO(a constant supply, that is, not running around trying to score and burgling houses!). Why not? Link to comment Share on other sites More sharing options...
swissy_fit Posted February 22, 2014 Share Posted February 22, 2014 have you heard about tetrathionmolybdate? http://www.thedcasite.com/Alternate_therapies/tetrathionmolybdate_treatment.html might be worth running it past your oncologist. That's an interesting link. I hope corevalues doc is the type that is open to suggestions, it's worth looking at, surely. Asbestos is nasty stuff, I wonder how many other nasty things are in our environment that we don't yet know about. Link to comment Share on other sites More sharing options...
Kurt Barlow Posted February 22, 2014 Share Posted February 22, 2014 That's an interesting link. I hope corevalues doc is the type that is open to suggestions, it's worth looking at, surely. Asbestos is nasty stuff, I wonder how many other nasty things are in our environment that we don't yet know about. I thought this was a scam by nasty lefties to deprive us of the wonderful benefits of this material supplied selflessly by several large corporations in the past? Link to comment Share on other sites More sharing options...
Kurt Barlow Posted February 22, 2014 Share Posted February 22, 2014 That's an interesting link. I hope corevalues doc is the type that is open to suggestions, it's worth looking at, surely. Asbestos is nasty stuff, I wonder how many other nasty things are in our environment that we don't yet know about. Melamin diesel particulates Lead Mercury Atomised depleted uranium to name a few Link to comment Share on other sites More sharing options...
scrappycocco Posted February 22, 2014 Share Posted February 22, 2014 What about the cannabis oil treatment. Very expensive to get the good stuff, do people have success with it? Link to comment Share on other sites More sharing options...
Oliver Sutton Posted February 25, 2014 Share Posted February 25, 2014 He's booked to appear at Sonisphere, Knebworth in early July. How many last appearances has he got left? Amazing. Link to comment Share on other sites More sharing options...
crashmonitor Posted September 30, 2014 Share Posted September 30, 2014 Another celebrity giving up on treatment. Very poignant this one since Lynda was so full of life and her television career was at its peak. Again bowel cancer and giving up the fight only 14 months after diagnosis. She is 66 years old. http://www.independent.co.uk/news/people/news/oxo-advert-star-and-loose-women-panelist-lynda-bellingham-confirms-terminal-cancer-following-yearlong-battle-9760316.html Link to comment Share on other sites More sharing options...
Mrs Bear Posted September 30, 2014 Share Posted September 30, 2014 According to wiki, Steve Jobs's cancer was perfectably treatable and curable, but he chose alternatives. Funnily enough, I'm probably mildly hypochondriac about minor ailments, but the prospect of dying of cancer never really bothers me much. My biggest fear for years now has been to end up like my mother, 96 and severe dementia, in a care home for 7 years now. And she was pretty bad when she went in, zero short term memory, couldn't even make herself a cup of tea, etc. Link to comment Share on other sites More sharing options...
winkie Posted September 30, 2014 Share Posted September 30, 2014 I understand that for some they may find it hard to understand but....quality has to rate higher than quantity....prolonging life with drugs and pain, loss and frustration or succumb to the fate that awaits us with peace and acceptance.....who knows how we will think if or when we are faced with death a few steps ahead of us. Link to comment Share on other sites More sharing options...
StainlessSteelCat Posted September 30, 2014 Share Posted September 30, 2014 Yes, it's all about quality. Even if you are trying to hang on as long as possible - it's because the quality of life you're experiencing makes it worthwhile. Link to comment Share on other sites More sharing options...
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